Facial Palsy Awareness Week: Day 6
Eating and drinking with facial palsy:
Eating without dribbling and drinking out of cups is something most people take for granted after about the age of 2, but with facial palsy it's not that easy.
Eating and drinking with facial palsy:
Eating without dribbling and drinking out of cups is something most people take for granted after about the age of 2, but with facial palsy it's not that easy.
Living with facial pain:
Anybody who knows me knows how much I love football. Unfortunately football is played outside in the winter. After my second episode when I was 21, my face became sensitive to the cold and it got worse after my third episode. Spending any amount of time outside when it was cold caused agonising pain. Sitting outside for 2 hours to watch a game of football was not going to happen.
I was prescribed medication to help with the nerve pain because it was stopping me from sleeping but I could only take them at night as they made me really drowsy. When it was windy was the worst, and made my whole face feel like it had seized up.
When I finally got seen by a specialist, 11 years after I first developed facial palsy, and started a programme of physiotherapy and Botox to help manage the synkenesis and hypertonicity things started to improve. After 3 years of treatment, I only sometimes get facial pain and it's not the agonising pain that it was, and although the cold still makes my face feel tight, I can now sit outside for 2 hours every other week to watch the football - which is mostly a good thing!
Life with unexpected facial expressions:
Life with a unique smile:
Life with an eye that doesn't blink:
It's the first ever Facial Palsy Awareness Week from 1-7 March #FPAW. Over the next 7 days you will read 7 statements on here that describe the effects of facial palsy. You will read them and then you can forget them. Those affected by this condition cannot forget, they live with this daily. This condition can hit any one of us, from small babies to the elderly, at any time with no warning. There are no nationally funded trials investigating causes or treatments for facial paralysis. Many people are denied treatment because it is deemed purely 'cosmetic'. I'd like you to read my statements over the next 7 days and decide for yourself whether this condition should simply be disregarded as cosmetic.
Thursday, February 26, 2015
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For my oral in English Language GCSE, in 1999, we had to prepare a presentation about something that mattered to us. I decided to teach my class about Robert Hamill. It was a story that broke my heart then and has stuck with me every since. Sorting through some old things today I found what I had written, folded safely in a poly pocket with a news clipping from the time with a picture of Robert with his two young sons.
Today was another day of exploration. With a couple of stops in mind and the big map we set off up Bear Notch Road. Bear Notch Road is a very steep, winding mountain pass that is closed in winter but offers terrific views from the top of the Mount Washington Valley. It's also a handy shortcut across from Bartlett to The Kanc.
Today was forecast as a hot one, and it was, with it reading 36 degrees after lunch, so we decided to explore the local area a bit more. In the air conditioned car. There were a few things we wanted to try and find and a few places we'd meant to go and hadn't.
I love old stuff. Specifically old American stuff. If I lived here my house would be full of old stuff. Old chairs, old dressers, old tables, but unfortunately I don't think I'd get them home to England, so I have to make do with stuff that will fit in my suitcase. Today was distinctly cloudy, so a great day for antiquing.
Last year we made a decision that this year we would explore a bit more. Some of our best experiences and stories came from stumbling across places only the locals know about and stopping off in small towns off the beaten track, so today we headed out with the map and a rough idea of a direction.
For weeks I had been craving ramen; really craving real ramen and whinging about not being able to have it so when my boyfriend said he'd found a restaurant that did ramen, and it appeared to be real ramen, I was over the moon. That restaurant was The Peach Tree in Shrewsbury where Chris Burt and his team bring love, enthusiasm and passion for great food, local ingredients and fabulous flavours together on plates that can only be described as works of art.
If when I tell you misogyny exists you retort so does misandry; if when I tell you I get groped in bars you tell me it's because of how I look; if when I call you out on defending a convicted rapist you go on to make a rape joke you are the reason I'm a feminist.
Whether it was my recent feminist rants and tonight's discussion about misogyny or not, I was acutely aware on my walk back from the station of feeling like a potential victim purely by virtue of being female. I was acutely aware that the clacking of my heels were potentially an advertisement to a possible attacker.

